Saturday, 31 March 2018

Psychosis Part 2


I am writing about about my experience of Psychosis, this time of year six years ago. I had descended into it in the early hours of the morning on 21 March 2012. It was dark of the moon, and I was driving across Australia on a spiritual quest. At the heart of my quest was my need to make amends to Indigenous people for my behaviour during my drinking years

My mood had dramatically crashed at dawn on the equinox, i had driven my car at 120 kph for seven hours, too afraid to stop, too afraid to turn around, paralysed with fear to such an extent that all I could do was keep doing what I was doing, which was driving west as fast as my car could go.

Even the Nullarbor has an ending though. Eventually I came to the small settlement of Norseman. I drove warily around the town for awhile. Then I mustered the courage to stop. Powerful forces were at play in mind. The people gathered at the cafe I stopped at were all Aboriginal. My journey was one of healing around my relationships with blackfellas. Those who know my story know how much I harmed some Aboriginal who were closest to me of anyone.

But my mind was influenced by  feelings of utter despair that were a physical sensation to me. I actually felt sick in my stomach, and had feverish chills and hot flushes  affecting my whole body. My mind started believing these Aboriginal people could read my thoughts. Mostly they were friendly, at worst they just ignored me, but i "knew" they saw me as a fraud. Someone who acted tough, but was really a sissy.

There was phone cover here so I rang my twelve step sponsor.  I was guarded in what I told him. I just said I was very frightened, and that I was having a panic attack. I didn't mention the delusional ideas, or the intrusive thinking about a tantrum throwing god. He told me everyone feels fear on their spiritual journey. He said I could turn around, but I may find I have to do it all again some time in the future I rang my mum, and she implored me to turn around.I compromised by turning left and driving down to Esperance, instead of turning right and heading north. Country Western Australia is the wrong place to be if you are having delusional ideas about Aboriginal people being able to read your mind.

There are no white people, except in shops. Everyone you see is black.  I just had to keep driving. I have only ever been to Esperance once. I was obviously quite unwell, so I am not sure how it would look to a sane person. But to me it is a parody of a seaside  town, created by a cynical post modern god. The countryside driving down there is heartbreakingly dry. There are farms but how anything grows is beyond me. The ponds and lakes are bordered by a crust of salt. Mostly there is no water at all. It is just completely flat. There are gum trees at least, but even they look defeated by this post-apocalyptic landscape.

And then you get to Esperance itself. I have been to some weird outposts of western civilisation in my time. Broome, in the north of Western Australia is a classic example, bewigged robed Barristers looking casual outside a colonial courthouse, while the victims of their system argue loudly and laugh unconcernedly in other languages sitting under coconut palms outside. Esperance seemed more menacing. All the trapping of a seaside town, but the coast itself was just rolling hills, that rolled into beaches and ocean. Where were the jagged cliffs and crashing waves? And again the only people in the streets were black. Where were all the white people? Hiding in their houses from the weird landscape? Well that was what I did.

I found a caravan park that had a cabin vacant, and booked in. It was a trauma speaking to the receptionist, but I managed. I tried to pretend I was a normal holiday maker and took the tourist drive around town. Just to really make the landscape look alien, in case there were some brave people who were not done in (probably germans, they have a capacity for coping with alien landscapes that astonishes me- read my as yet unwritten blog called "German Tourists"). Just to really make things look weird, there is a Pink Lake. I went back and hid in my cabin drinking cups of strong coffee made on my portable cooker.




















He told me we all feel fear when we are on our spiritual journeys, he said I could turn back, but I may need to try again some day

Wednesday, 28 March 2018

Sailesh

I have been meaning for some time to write the full story of the death of Sailesh Rajan. I am holed up in a hotel in Bangkok with bronchitis and influenza. Too sick to do anything but write.

I have tried many times to write all this down, it is so painful that I always give up. So I will try again in the freezing aircon of the the Dream Hotel soi 15 Sukhumvit Bangkok.

Sailesh originally thought he had a minor respiratory problem as well. Then the diagnosis turned to tuberculosis, and in the end we were all praying and then wishing it was tuberculosis. But I will get to that.

When I first met him Sailesh was a 24 year old know it all atheist. He was a volunteer at the Aboriginal Legal Service in Sydney where I am a senior Lawyer. He was very brash, very opinionated, but incredibly likeable. I once used the word "Bumptious" to describe him to another volunteer. After they had met, the volunteer looked up "Bumptious" and said. "well he is that."

It is not surprising that he was bumptious. He was the only child of a very wealthy Indian couple of Tamil ancestry and Brahmin heritage.  His father had made his money working as an accountant for arms salesmen. He operated on the edges of international organised crime. They lived in the Netherlands until Sailesh was twelve. Then the decision was made to move to Australia. It was made solely because Sailesh would get better opportunities in Australia. He was enrolled in an expensive school and the lives of his parents  (particularly his beloved mother) revolved around making everything perfect for him.  His dad dreamed of his son being an investment banker, his mum just wanted him to return to his Hindu faith.

It was about the time that I first met him that Sailesh started to get interested in spiritual matters again. He had to fight against his father to pursue the path in criminal law that he wanted. So perhaps he subconsciously sought his mother's assistance by becoming involved in the Chinmaya Mission.

That is how our unlikely friendship developed.  It was unlikely because of age difference, I am more than 30 years older than him, I am from a small country town, he was a citizen of the world, i was full of world weary cynicism, he was alight with innocent fire. But I had an interest in the spiritual through my involvement in twelve step recovery. We got talking about it and a deep friendship developed. I attended some talks by leader of the mission about the Bhagavad Gita. I introduced him to some of the principles of my path. He was drawn particularly to "one day at a time".

There were other things that we shared. He came in late one day when he was rostered on as a volunteer, I tapped my watch and said "A man who has not done half his days work by 10 am runs the risk of not doing the other half either" He immediately recognised the quote, "Nellie, from Wuthering Heights, my favourite ever novel!". Not mine; but for an Indian Dutch boy he had a pretty good grasp of English literature.
He was a superb mimic and he would have us all in fits imitating the various accents of the people we met. He mercilessly took off his parents.
I had met his parents over the years. at his admission as a solicitor in the Supreme Court and other functions.

I believe his parents liked me and I think I had some role in his father backing down over Sailesh's decision to accept a job with The Aboriginal Legal Service at Bourke. He of course,wanted Sailesh to be a merchant banker.
I was very keen for Sailesh to take the job, I thought it was a once in a lifetime opportunity. In those years at Bourke and then Dubbo, Sailesh flourished. His spirituality flourished also. His interest at that time was to go to the bar, and he had a five year plan to that effect.
He suffered racism in his time in the west, he was bullied but he continued to grow. On his return to Sydney he started to appear before Judges and Magistrate who were appreciative of his quick mind. I remember seeing him aglow after a difficult but rewarding day in front of a tough Judge. "He made it hard for me, but he listened" he said.

The five year plan was still in operation, but Chinmaya mission was consuming more  time and
energy.

In those years back in Sydney he retained many very aggravating traits. One of the worst was a take a phone call while part of a group and not move away. He might be shouting at the person on the other end the phone while his friends were looking on bemusedly.

His cousin told the story of Sailesh ringing up and inviting himself over for dinner one night when his parents were away. The cousins were pleased to see him but Sailesh sat down at the dinner  table with his files for tomorrow, worked on them, and barely spoke during the meal. He left when he finished eating.

He was consumed by his work. I am not sure when or why that changed. But in the last year of his life a grand spiritual journey to India was planned. I became aware later on  that the idea that he should be a renunciate had become important to him. His father had succumbed to the criminal law idea, but was totally unsupportive of Holy Orders. His mum just adored him.

He left on the journey in late 2010. at first there were Facebook postings about his doings at the mission. Then silence descended. In mid 2011 rumours floated back that he was sick and would not be returning to work in the near future. I heard from him in July that year and went out to West Pennant Hills to see him. His old girlfriend turned up at the same time and he awkwardly explained to us the gravity of the situation.
The Indian doctors had diagnosed Tuberculosis, but the Australian doctors were concerned it might be a very rare form of cancer that looked a lot like tuberculosis. Sailesh told his ex that he was past love in a romantic sense and just wanted to love everyone. He gave us both this piece of advice, "If you love someone, tell them now."

He also said "this could all go to shit before Christmas." Then he laughed at his prior reliance on five year plans.

We spoke a few times over the next few months and then in November I got a call that he was in Westmead hospital. I caught the train out to see him. As I was walking to the front entrance a car tooted its horn. It was my ex-sponsor from my twelve step fellowship. we had a great chat and discussed  synchronicity, how the right people always turn up at the right time. But the synchronous forces at play were really big that day.

While I was downstairs having my conversation ,Sailesh's mum and he had been given the grim news. He had sarcoma. Sailesh's dad was parking the car, so he had not heard. I was briefly apprised of the situation and I said "well I better go then".
Sailesh said "Actually I was hoping you would stay while I tell Dad."
I just wanted to run. I did not want to be there for this piece of reality

I rang my  current sponsor out in the waiting room.
His words cut through me
"Is there anybody else there who can do it?"

Of course there was no-one. I had been chosen by god or by circumstance to be the one who was present when Sailesh told his Dad.

Everyone  knew the gravity of the situation. Sailesh had explained his chances to me and his ex that day in July. Sarcoma was brutally fatal. Only a miracle could save him now.

His Dad walked into the ward and Sailesh tersely told him the news.

His dad broke down and started wailing "How can this happen to me".

And that was why I was there. I was old enough to be able to take Ranga Rajan out of that room and say to him "Your son needs you to be strong now".

I have never seen somebody pull himself together so fast. He straightened his shoulders and went back into the room. And his strength never wavered until Sailesh was dead.

One thing about having having a strong faith is that it helps you to believe a miracle is possible. I had that faith and so did Sailesh and his mum. I have come to believe that a miracle did happen, although not the one we were praying for,

 Sailesh's dad put his faith in medicine and doctors. Fortunately one of the other lawyers at the Aboriginal Legal Service had a husband who was head of Westmead hospital. He was not an expert in the necessary fields, but he put his knowledge of those who were at the disposal of the family.

Ranga bewailed to me on one occasion his decision to come to Australia rather than the USA, because he felt Sailesh's chances of survival would be higher in America, because the levels of medical expertise were higher.  I did not comment. I had read the stats. A miracle was the only hope.

Sailesh was released from hospital soon after, and went home I visited him couple of times. The grief was palpable in that house. But everybody remained positive. I was shown books filled with stories of  miraculous cures.   Then, during late November, Sailesh's beloved labrador Johan died of old age.

He was was being strongly supported by Chinmaya mission. There was group there with a special devotion to Hanuman and they organised a day of 1000 prayers to Hanuman. Many of his friends and other Mission members spent a Saturday devoted to the ritual beloved by those who follow the Monkey God. One thing I have learnt about Hindus is that they will take the time to do a ritual properly. Us Anglos are a very hasty people.

I did not attend that day although i was invited. I wish I had now. I saw Hanuman today (I have left Bangkok and come to Pattaya, the hotel in Bangkok was having a planned blackout today, so i mustered enough energy to move) There is a statue on the border of Pattaya and Jomtien. The local twelve step meeting I attend is just behind the statue. Kali  has become a part of my life but I do not know much about Hanuman.

Soon after the prayer day Sailesh was feeling well enough to see the guru of the mission, who was visiting Australia. I spoke to him by phone and he was down. He thought he had picked up some virus. I saw him once more at home and then the next time was Westmead again. During the visit at home he opened up to me that if he recovered he wanted to be a monk. He used the term renunciate, but I understood it mean the same thing. He explained how he had been thinking about it for many months.

I had planned six months long service leave some time before. It was due to start on Christmas Eve . My plan was to make a journey of amends to some of the places where my out of control ego had caused problems in the past. I was sitting around at work in the weeks leading up to this leave, twiddling my thumbs. I persuaded the bosses to let me finish up on 17 December. I got the phone call the next day that Sailesh was in Westmead. I jumped on the train to Westmead.

He was in the Chest ward at first. The sarcoma was in his lungs and breathing was difficult. He had found that most comfortable way for him to be was kneeling, with his thrown back as far he could stand. His mum and dad were there, and a Brahmachari from the Australian branch of the mission.
Even at that late stage there was still hope for a miracle and we all prayed in our own ways. The last days fold in on each other and i have jumbled memories. I remember me talking to his dad about Sailesh's desire to become a monk and his dad tearfully stating "anything, if he can only live".

I later spoke with Sailesh privately about this. I wondered if his pain is chest was a physical manifestation of his parents desires for him and it was smothering him. He firmly denied that. He said"I am going to do what dad wants" . He was filled with gratitude at the life he had been given. I told him if he only lived everyone would support him in his desire to be a monk.

I saw him a few times over the next few days. His mum and Dad and the monk barely left the hospital. On Wednesday the 22nd of December I arrived at the Hospital to be told Sailesh was to undergo an operation without anaesthetic, performed by a doctor outside his treating team. His main Doctor refused to do the operation because its chances of success were too small. Sailesh told me about all this and it was the last conversation I had with him. His dad wanted him to undergo the operation and he was going to do it. It gave the faintest chance of Sailesh surviving a bit longer, to give time for the miracle to happen. It had to be without anaesthetic, because anaesthetic would kill him.

I hung around the hospital that day. We all prayed in various ways. I had found a chapel on the ground floor. Mum and Dad and Brahmachari just prayed in his empty room. When he came up from surgery he was conscious. He was weak and shaken (if it were possible to be more weak and shaken than he was before). I left and was told he lapsed into uncosciousness that night.

I am not sure when the palliative care conversation occurred, it was when Sailesh was still able to communicate. He had spoken to two nurses in the palliative care section. I had not met them, but one was named Johan. The irony was not lost on anyone. When the head of the medical team spoke to Sailesh's dad, I think while Sailesh was having the abortive operation, Ranga told him "I know Johan is the junior nurse, but my son prefers him. He has the same name as his dog". He stuck up for Sailesh in every way he could.

I returned to the hospital on the Thursday (the 23rd) but stayed only a few minutes. He was unconscious and there was nothing anyone could do. His parents and the holy man remained there at the hospital. Although there had been plans to move Sailesh to the palliative care ward, it never happened. He just stayed in the chest ward.
On the Friday I was at the gym. My phone rang. It was on silent, but somehow i knew to look at it. It was Gopalji. The holy man, his name has just come back to me. He said "Sailesh is dead". I can't remember if those were his exact words, whether he used some of the less confronting terms us Australians use, or whether he just stated the facts.

I rushed home straight out to the hospital. His body was still in the bed. But something had left. It was no longer Sailesh. There was a ceremony Gopalji invited me to participate in, involving tapping some drops in Sailesh's open mouth. Then gopalji got serious trying to arrange a cremation that day. It was 24th December. In the tradition they all followed it was important that the cremation occur immediately. It might be several days if it did not happen that day, (because of Christmas) and that was to be avoided if it all possible. It is Hindu tradition that the cremation be as soon as possible after death.

Eventually a window was found in the Blue Mountains at Leura. It was gratefully accepted and everyone jumped into cars and travelled the 100 or so kilometres. Many members of the Mission went, and I was very proud that so many of his (and my) workmates came. They dropped everything and drove for several hours through the city to farewell their friend. It is a sane way to respond to death

I was in thongs and shorts, I had gone straight to the hospital from the gym, and then up the mountain to Leura. It did not matter. Some people were wearing white, the hindu colour of mourning, but most just came as they were.

After the ceremony was finished we all waited in the chapel while Saileshes parents and Gopalji went to crematorium where his body was burned. They brought the ashes back in to that chapel to general wailing. The air was thick with the smell of his burnt body. I could not wait to get out of there. But I managed to wait long enough to farewell his Mum and Dad and Gopalji.

That is not the end of the story. The next day was Christmas Day. I went up to Bowral and had Christmas dinner with my Mum and Dad.  Then on  Boxing day I guest speaker at a beginners meeting in my 12 step fellowship. Only me and the organiser turned up. I still spoke and we completed the meeting in the usual way. It was as I was leaving that I got a strong sense of the presence of Sailesh. His message was "It's OK mate, you can only do your part".

Then on the 28th was my sobriety birthday. I stayed in Sydney and went to my usual meeting. I was 9 years sober. I expected something miraculous to happen, but nothing really did. Then on the 29th I headed off in my car to Bourke to say a prayer for Sailesh in that remote Outback town. It seemed important to do it because it was the decision to take the job in Bourke that opened up Sailesh's life.

Sydney to Bourke is about 800 ks, so it was a long drive.

I have a twin in sobriety, She had her last drink on the 28th December, 2003 , just like me. But we celebrated our birthdays one apart, me on the 28th, because I put the drink down that day, my twin on the 29th because she woke up hung over on that day ready to stop. It was a source of fun for us to argue about which was the right day to celebrate.

In a little town 160 k's Northwest of Dubbo, called Trangie, I received a phone call from a sobriety friend. She wished me happy birthday. I reminded her that today was my twins birthday, not mine. She replied that my twin was somewhere out near Dubbo. She had just spoken to her before me.
I immediately rang my twin.
"Where are you" I blurted out.
"Just coming into this little town called Trangie" She replied.








What is Psychosis like?

I am one of the lucky ones who has experienced psychosis. I want to write about it because it is possible people will hear me, when they don't hear the voices of people in psychosis who are not white, not middle class, not educated or not male.

I have Bipolar 1 disorder, my experiences of psychosis are rare indeed. So rare that until recently I did not know I was mentally ill at all. I put my psychotic experiences down to adulterated marijuana, until I had a psychotic experience nine years clean and sober. Even then it did not cross my mind that I was psychotic. I called it a panic attack and remained undiagnosed for some years.

The story of my most recent psychotic incident is that I was travelling in my car across Australia. I was clean and sober, and was making a journey to Port Hedland, Western Australia to make a general amends to the people and town. I had worked there 20 years earlier, and it was the place where my drinking had really got out of control. I had worked with Aboriginal people, and had been treated with great respect and acceptance. Some of my behaviour while drunk, and sometimes while not drunk, had been appalling. I wanted to go and look my past in the face.

I was feeling very spiritually connected when I set out. I drove through Trangie where I had had a remarkable spiritual experience a few moths earlier.  (See my post called "The Death Of Sailesh Rajan") I camped at Nyngan and was eaten alive by mosquitoes. The Bogan River was in rare flood.
I had probably stopped thinking clearly already and did not do the sensible thing and stay in a motel. I spent the next few months worrying that I had caught Ross River virus.

I spent the next night in Port Augusta. Ten hour drives were what I was aiming for, and I was achieving it. I had camped in Port Augusta before , with my old mate Mark Zanker. The town then had filled me with fear and it did again. These remote towns do something to me. I had felt an edge of fear in Broken Hill, where I had stopped earlier in the day, but it was stronger in Port Augusta. I will describe the particular fears my psychosis entailed later, but I think the process, descent, had begun.

I was still feeling connected, at times, as well. I was very much up and down. I had no idea at that time about Bipolar disorder. I did not even consider I could be affected by depression, let alone Bipolar. But I was very interested, had been for years, in the phases of the moon and the progress of the seasons. The progress of the seasons is of particular importance in the management of Bipolar. Manic incidents are most common at the equinoxes, March 21, and September 21. It is to do with brain chemistry changes caused by rapid changes in the amount of daylight every day. Similarly travel across timezones can trigger mania, for the same reasons.

It was March 19 when I camped in Port Augusta. I had already crossed one timezone, and would cross another that day as I proceed into Western Australia. The ten hour drive on 20 March took me halfway across the Nullarbor plain to Eucla.

Australia is very sparsely populated except for the major cities. But the Nullarbor plain is something else again. There is a roadhouse every 100 kilometres or so, but that is all there is. Miles upon miles of flat featureless plain. Nullarbor means "no trees" in latin, and i kept repeating "No Trees" as a kind of mantra. And there are none.

Eucla is just on the Western Australia side of the border. At the border I had to throw out a potato sack filled with firewood that i had carried for months. You cannot take organic matter into WA.There is a checking station there.

Eucla is gradually being eaten up by sand, but there is camping ground there, and showers and toilets. It is not much fun camping there though. You pitch your tent in two inches of dust that covers rock hard earth underneath. I gave up on using tent pegs and secured my tent to the car and some rocks. Even worse though, is the sensation of the three sides of the continent pressing in on you. North, East and West. And to the South the sand and beyond it the hungry, cold Southern Ocean.

But I was tired. And I forgot to mention, it was dark of the moon  that night. Dark of the moon, crossing timezones and Equinox. The Aces on the Poker Machine of my madness had lined up. And they had lined up in the loneliest place I had ever been. But none of this crossed my mind. I was bonecrushingly tired and after struggling to get my tent up, and cooking a meal on my portable gas cooker I was ready for a shower and bed. There was a code for the showers, to stop non paying guests from using it. I had forgotten the code and a fellow guest refused to  tell me. So i waited. I was too tired to walk over to the office and get it. Pretty soon someone else came out and told me. It was just dark as I lay down in my tent closed the flap against the dust.

I remember waking up and feeling gritty and uncomfortable. I made the mistake of going outside to urinate. It was dark and frightening. I seemed to drag a bucket of dust back into the tent, but i managed some uncomfortable hours of sleep. Then I woke again. Bright-eyed and anxious. The dark of the moon and the Equinox registered on me then. I tried going back to sleep but it was useless. I had no idea of the time. I was unaware if my phone was on NSW, South Australian, or Western Australian time. It was dark though, and there was no sign of dawn. I used my portable stove to make coffee. I had three cups and still it was dark and quiet.

So I packed up the car as best I could in the total darkness and started driving west. After an hour light started appearing in the sky. I was driving away from the sun, but slowly I sensed light seeping into the darkness. As it became lighter i saw that there were clouds ahead. What were the chances of it raining in this barren, godforsaken corner of the world? Then as sun crossed the horizon, directly behind me, a beam of light lit up the cloud. Immediately it was broken into a rainbow. A vertical rainbow from the ground right into front of me reaching straight up for heaven. My heart sang. God was with me on this quest.

Almost instantaneously my feelings crashed. With my feeling crash came the realisation that this was not a vertical rainbow, but just one whose arc was so vast that it momentarily looked like it was straight. My crashing feelings started to hurtle downwards out of control. I knew I was a fraud. I started chanting, in my head my other mantra, that I had used in the past in incidents that seemed to be caused by marijuana, "Don't think, don't think". But just like in the past it didn't work. I was terrified. I had ideas of a rampant toddler god in nappies, firing thunderbolts at me. Are these hallucinations? I don't know, iI suspect not. But each time the madness has descended I have these or similar ideas I can't stop thinking.

I was too afraid to stop the car, in case it would not start again. Too afraid to turn around. Too afraid to slow down. So I kept driving west at 120 KPH. In despair. I passed several road hoses but was too afraid to stop, but eventually i had to stop. I managed to buy petrol and check if there was mobile phone coverage. There was not. I was unable to ask for help but i did manage to order scrambled eggs on toast and eat it in the restaurant. All the workers at the roadhouse looked like serial killers to me. I kept my presence small and got out of there as quick as i could. I considered asking to use a land line, but was too afraid.
From Eucla to Norseman, according to google maps is 7 hours. I drove the distance that day in utter terror.